Technology Improves Outcomes for Interstage Single-Ventricle Patients
CHAMP Decreases Mortality Rate through Careful Home Monitoring
Until recently, as many as 20 percent of babies with single-ventricle heart defects died between their first and second surgeries. To improve outcomes for these patients during that critical interstage period, Girish Shirali, MBBS, FACC, FASE, Division Director of Cardiology at Children’s Mercy Kansas City, led a team that designed and launched the Cardiac High Acuity Monitoring Program (referred to as CHAMP). This program offers home monitoring of these babies by a multidisciplinary team, supported by the proprietary CHAMP app, which is connected to a central database. In the four years since the launch, the mortality rate for all babies being monitored via CHAMP has been reduced to 2.4 percent.
A study published in the World Journal of Pediatric and Cardiac Surgery 1 in April 2018, confirmed additional benefits. The study compared traditional three-ring binder home monitoring of interstage patients to monitoring via the CHAMP app during a three-year period, and showed:
- Fewer unplanned intensive care unit days per 100 interstage days
- Shorter delays in care
- Lower resource utilization at readmissions
- Lower incidence of interstage growth failure
- Preferred by a majority of caregivers
Creating a More Flexible Experience for Parents
Initially the CHAMP app was developed on a single mobile platform. To create a more consumer-friendly approach, work is underway today to create a platform-agnostic model of the app. By summer 2019, the CHAMP app will also be available on all commonly-used mobile platforms including Apple, Android and Windows. From a parent’s perspective, this development offers several key benefits:
- It eliminates the potential need to learn new technology in the midst of a stressful health situation. Parents can use whatever device they already have.
- Parents can use their own cellular data plan or Wi-Fi to access the app.
- The updated app will work on smartphones, too. Phones are less bulky than tablets, and most parents are more comfortable using their phones.
- Adherence to the monitoring protocol will be simplified.
Sharing CHAMP Nationally
From the outset, Dr. Shirali and his team planned to share CHAMP with other hospitals who also cared for patients with single-ventricle defects. In 2016, Lori Erickson, APRN, CHAMP Clinical Program Manager, led the effort to begin bringing additional sites on board with CHAMP. Today, nine additional sites are utilizing the CHAMP app, and babies in 17 states are being followed. That translates into 280 babies who have been monitored via CHAMP so far – 130 at Children’s Mercy and another 150 from the other nine sites combined.
Creating a Foundation for Research
Children’s Mercy has also developed a database to collect information on single-ventricle patients. The database tracks more than 400 data variables per child, in addition to the information parents enter via the app. To date, more than 275 families have signed up to allow their babies’ data to be included, and the database holds 217,000 data points from the active hospitals.
Sites that implement CHAMP sign a master research agreement to participate in this nationwide database. Its infrastructure was designed to support research studies, and individual teams will eventually have the ability to write a proposal that, if approved, would grant them access to all details in the database for the purposes of research projects.
The Future of CHAMP
For Dr. Shirali and his team, CHAMP is a proof of concept. Now that its effectiveness is understood, the team is considering ways to extend the technology to help babies with other high-risk conditions that require careful monitoring.
Another goal is to ensure CHAMP becomes smarter and quicker at alerting care teams to problems, even before they occur. For example, today CHAMP monitors babies’ oxygen saturation levels and triggers alerts for the care team when levels are out of range. Using artificial intelligence, the team plans to “teach” the app to anticipate potential risks so they can be avoided altogether.
Learn More about Cardiac Care
Girish Shirali, MBBS, Division Director, Cardiology
For consults, admissions or transport call: 1 (800) GO MERCY/1 (800) 466-3729.
1 Interstage Outcomes in Infants With Single Ventricle Heart Disease Comparing Home Monitoring Technology to Three-Ring Binder Documentation: A Randomized Crossover Study. Bingler M, Erickson L, Reid K, Lee B, O’Brien J, Apperson J, Goggin K, Shirali. G. World Journal for Pediatric and Congenital Heart Surgery (May 2018); https://doi.org/10.1177/2150135118762401.
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Children’s Mercy Kansas City is ranked as one of “America's Best Children's Hospitals” in nine specialties rated by U.S. News & World Report and has received MagnetTM recognition for excellence in nursing services five consecutive times. With 386 licensed beds and a medical staff of more than 750 pediatric subspecialists, we care for children from all 50 states and from around the world. In addition, our leadership in pediatric genomic medicine and individualized pediatric therapeutics is driving research and innovation in neonatology, nephrology, endocrinology, gastroenterology, neurology, heart, cancer and other subspecialties to transform outcomes for children. Children’s Mercy also is nationally recognized for innovation in psychosocial care and creating a family-centered environment focused on the unique needs of hospitalized children and their families. Our love for children powers everything we do, inspiring our research, innovations and our everyday care. Because love has no limits. And with it, neither do we.